Taylor's Journey

Let me start by telling you how Taylor's journey began. In the middle of fall of 2005 when my wife Christy was pregnant we were told that our child may have Down Syndrome, we were devastated. Dr. Lebel (OB-GYN) asked to go and see a maternal-fetal specialist the following day. The next day we went to see Dr.Gregg (Maternal-Fetal Specialist) after performing all of the test he said that the results were worse then previously thought, he said our child had Anencephaly caused by Amniotic Band Syndrome he then informed in his best medical opinion we would need to terminate the pregnancy because our baby wouldn't live more than a few days if it made it full term; after alot of prayers and consulting family and our pastor we decided that "if GOD has decided to give our child a heartbeat then it isn't our place to take it away from her. Fast forward to March 24, 2006 11:44am @ Greenville Memorial Hospital this is it here she is our precious daughter Taylor. The medical staff informed us that she would live for only a couple of hours due to her conditions. At 12:30 am on March 25, 2006 a nurse from the NICU came to my wife's hospital room and told us this was it the baby was about to die and wanted to know if we wanted them to bring her in the room with us so she could pass away with us, I told her NO I want you to do what you need to to keep her comfortable and everything they could to keep her alive. The next morning after very little sleep they brought our lil girl to us she was having trouble breathing and the medical staff didn't want to feed her because they said she could aspirate on the food. So we waited a little while and kept wondering if we should get the nurses to feed our daughter; Taylor our daughter stop breathing twice for several minutes we thought this was it, but she is a fighter and she started breathing again. After talking with my wife's nurse she told us that it is our decision and don't let the medical staff make our decisions for us if want Taylor to be fed then they would have to it. When Taylor started to get fed she started to get her strength and became very active. After Taylor was born the hospital released her five days later on hospice. After a few months had passed Interim transferred Taylor to Pediatric Home Health Care because she has defide the doctors diagnoises and was still alive and kicking. Then the home health care system in Greenville dropped all of the pediatric patients.