Saturday, August 29, 2009

The beginning of the surgeries

Since then Taylor has had an encepholcele removal it was filled with over 600ml of fluid and 1/3rd of her brain which also had to be removed, a G-tube (feeding tube) surgically implanted, cleft lip repair, a VP shunt installed, VP shunt revision, BMP Mastergraft, Crainoplasty, eye cleft repair, BMP Mastergraft II, Crainoplasty II, VP shunt revision II and one of her fingers had to be partially removed due to the Amniotic Banding. Taylor was born with most of her Frontal, both pariatial and most of her occipital bones missing. She also was missing most of her fingers and toes, a facial cleft which caused one of her eyes not to be able to develop completely and she is also blind. Even with all her medical issues she is the happiest child I have ever seen. She is the biggest cuddle bug around. She loves to laugh at the Andy Griffith Theme song and play patty cake.

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